At the University of Michigan School of Public Health (since 2010) my work is two-fold. I work as a researcher investigating the ethical, legal and social implications of health data sharing, biobanking and learning health systems, and I work as a designer on the build of the school’s online master’s degree program launching in 2019.
My current research focuses on ethical considerations arising from the life cycle of health data, with precision oncology as a use case. I worked previously from start to completion on a 6-year grant to conduct and assess statewide community engagement efforts on Michigan’s newborn screening and biobanking programs. We imparted a complex and sensitive message: A large population (~4.5 million) in the state is not aware that their own dried blood samples are stored in Detroit as resources for health research. For this campaign, I created a website, educational videos, printed materials, multi-media content for two Facebook campaigns, and images and content for four statewide surveys. [See also: academic work].
I design communications for an annual symposium on the ethical, legal and social implications of learning health systems (elsilhs.org), and to support the instructional and content design of online courses across the School of Public Health.
My public health communications work includes a CDC report on priorities for public health genomics, internal communications on visioning, change and innovation, grant proposals, survey outreach, white-board animated videos, and graphic design and data visualization to support publications and conference presentations.
I also wrote a blog about genetics for a popular audience, and have contributed social media content as a volunteer in service of public health causes.